{"id":6055,"date":"2025-04-14T07:49:29","date_gmt":"2025-04-14T04:49:29","guid":{"rendered":"https:\/\/kav.org.tr\/new-site\/?p=6055"},"modified":"2025-05-13T15:52:50","modified_gmt":"2025-05-13T12:52:50","slug":"coradis-cooperation-for-rare-disease-sufferers","status":"publish","type":"post","link":"https:\/\/kav.org.tr\/tr\/2025\/04\/14\/coradis-cooperation-for-rare-disease-sufferers\/","title":{"rendered":"CORADIS \u2013 Cooperation for Rare Disease Sufferers"},"content":{"rendered":"\t\t
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CORADIS<\/strong><\/span><\/h3>\n

Proje S\u00fcresi:<\/strong><\/span> 36 Ay
Proje \u00d6nceli\u011fi:<\/strong><\/span> Sa\u011fl\u0131k Enformasyonu \u2013 Sosyal cinsiyete \u00f6zel sa\u011fl\u0131k tehditleri ve nadir hastal\u0131klar dahil, bula\u015f\u0131c\u0131 olmayan hastal\u0131k tehditlerini \u00f6nleme ve m\u00fcdahale mekanizmalar\u0131n\u0131n geli\u015ftirilmesi<\/p>\n

Proje Tan\u0131t\u0131m\u0131<\/span><\/h3>\n

CORADIS Projesi, bula\u015f\u0131c\u0131 olmayan hastal\u0131klar \u2014 \u00f6zellikle de nadir hastal\u0131klar ve sosyal cinsiyete \u00f6zel sa\u011fl\u0131k tehditleri \u2014 konusunda toplumlar aras\u0131 dayan\u0131\u015fmay\u0131 ve bilgi payla\u015f\u0131m\u0131n\u0131 g\u00fc\u00e7lendirmek amac\u0131yla hayata ge\u00e7irildi. KAV, bu projede yer alarak hem hasta ve hasta yak\u0131nlar\u0131n\u0131n sesini duyurmay\u0131 hem de bu alanda s\u00fcrd\u00fcr\u00fclebilir i\u015f birli\u011fi mekanizmalar\u0131 kurmay\u0131 hedefledi.<\/p>\n

Hedeflerimiz<\/span><\/h3>\n
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    Nadir hastal\u0131klardan etkilenen bireyler ve yak\u0131nlar\u0131 aras\u0131nda g\u00f6n\u00fcll\u00fcler ve uzmanlar\u0131n da katk\u0131 verdi\u011fi bir dayan\u0131\u015fma ve bilgi payla\u015f\u0131m a\u011f\u0131 kurmak<\/p>\n<\/li>\n

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    Avrupa\u2019daki sa\u011fl\u0131k bilgi sistemlerine katk\u0131 sa\u011flayacak \u015fekilde, nadir hastal\u0131klara dair verilerin s\u0131n\u0131fland\u0131r\u0131lmas\u0131 ve bilgi ak\u0131\u015f\u0131n\u0131n g\u00fc\u00e7lendirilmesi<\/p>\n<\/li>\n

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    Bu kapsamda geli\u015ftirilecek dijital platformlar ile etkile\u015fim, fark\u0131ndal\u0131k ve \u00e7\u00f6z\u00fcm \u00fcretme s\u00fcre\u00e7lerini h\u0131zland\u0131rmak<\/p>\n<\/li>\n<\/ul>\n

    Neden \u00d6nemli?<\/span><\/h3>\n

    Nadir hastal\u0131klar, hayat kalitesini derinden etkileyen ve \u00e7o\u011fu zaman te\u015fhis, tedavi ve destek s\u00fcre\u00e7lerinde b\u00fcy\u00fck zorluklara yol a\u00e7an sa\u011fl\u0131k sorunlar\u0131d\u0131r. Bu projeyle, bu zorluklara kar\u015f\u0131 Avrupa \u00e7ap\u0131nda ortak stratejiler geli\u015ftirilmi\u015f ve hasta yak\u0131nlar\u0131n\u0131n dayan\u0131\u015fmas\u0131 te\u015fvik edilmi\u015ftir.<\/p>\n

    \u00c7\u0131kt\u0131lar ve Etkiler<\/span><\/h3>\n

    Proje sonunda kamuya a\u00e7\u0131k bir dijital platform ve bilgi taban\u0131 olu\u015fturulmu\u015f; bu sayede hem fark\u0131ndal\u0131k art\u0131r\u0131lm\u0131\u015f hem de politika yap\u0131c\u0131lar ve sa\u011fl\u0131k \u00e7al\u0131\u015fanlar\u0131 i\u00e7in \u00f6nemli bir kaynak ortaya \u00e7\u0131km\u0131\u015ft\u0131r.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

    CORADIS Proje S\u00fcresi: 36 AyProje \u00d6nceli\u011fi: Sa\u011fl\u0131k Enformasyonu \u2013 Sosyal cinsiyete \u00f6zel sa\u011fl\u0131k tehditleri ve nadir hastal\u0131klar dahil, bula\u015f\u0131c\u0131 olmayan hastal\u0131k tehditlerini \u00f6nleme ve m\u00fcdahale mekanizmalar\u0131n\u0131n geli\u015ftirilmesi Proje Tan\u0131t\u0131m\u0131 CORADIS […]<\/p>\n","protected":false},"author":1,"featured_media":6251,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"give_campaign_id":0,"footnotes":""},"categories":[102],"tags":[],"class_list":["post-6055","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-tamamlanmis-projeler"],"_links":{"self":[{"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/posts\/6055","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/comments?post=6055"}],"version-history":[{"count":7,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/posts\/6055\/revisions"}],"predecessor-version":[{"id":6311,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/posts\/6055\/revisions\/6311"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/media\/6251"}],"wp:attachment":[{"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/media?parent=6055"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/categories?post=6055"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/kav.org.tr\/tr\/wp-json\/wp\/v2\/tags?post=6055"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}